{"id":5665,"global_id":"www.tauli.cat\/actualitat?id=5665","global_id_lineage":["www.tauli.cat\/actualitat?id=5665"],"author":"7","status":"publish","date":"2023-03-30 12:27:36","date_utc":"2023-03-30 10:27:36","modified":"2023-03-30 13:15:52","modified_utc":"2023-03-30 11:15:52","url":"https:\/\/www.tauli.cat\/actualitat\/agenda\/millorant-la-vida-dels-pacients-amb-fibrosi-quistica\/","rest_url":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/events\/5665","title":"Millorant la vida dels pacients amb Fibrosi Qu\u00edstica","description":"<p>En els darrers anys s\u2019ha avan\u00e7at molt en el <strong>coneixement i tractament de la Fibrosi Qu\u00edstica<\/strong> \u2013una malaltia gen\u00e8tica i heredit\u00e0ria que afecta els pulmons, el tub digestiu i altres \u00f2rgans\u2013, per\u00f2 avui en dia segueix sent una patologia que no t\u00e9 cura.<\/p>\n<p>Per als afectats i per les fam\u00edlies, la recerca i la divulgaci\u00f3 s\u00f3n essencials per aconseguir avan\u00e7ar en el coneixement i la cura de la malaltia.<\/p>\n<p>Amb aquesta jornada, l\u2019Institut d\u2019Investigaci\u00f3 i Innovaci\u00f3 Parc Taul\u00ed convida el conjunt de la ciutadania a <strong>con\u00e8ixer de prop com \u00e9s la vida quotidiana del pacient amb FQ<\/strong>, i comptar\u00e0 amb la pon\u00e8ncia de <strong>Paco Garc\u00eda<\/strong>, president de l\u2019Associaci\u00f3 Catalana de Fibrosi Qu\u00edstica.<\/p>\n<p>Aix\u00ed mateix, <strong>Sara Bajja<\/strong>, col\u00b7laboradora del <a href=\"https:\/\/www.tauli.cat\/institut\/recerca\/arees\/malalties-minoritaries\/#grup-fibrosi-quistica\">grup de recerca de Fibrosi Qu\u00edstica de l\u2019I3PT<\/a>, oferir\u00e0 una pon\u00e8ncia sobre les <strong>darreres novetats de l\u2019efecte dels moduladors CFTR<\/strong>, que estan canviant la hist\u00f2ria natural de la FQ i demostra la import\u00e0ncia de la recerca per seguir avan\u00e7ant en el tractament d\u2019aquesta malaltia.<\/p>\n<p>Finalment, es lliurar\u00e0 la primera <strong>Beca Pau Massana per a la investigaci\u00f3 de malalties minorit\u00e0ries<\/strong>, que es destinar\u00e0 a un projecte de recerca cl\u00ednica pulmonar de l\u2019I3PT. Aquesta beca ha sigut finan\u00e7ada gr\u00e0cies a la <a href=\"https:\/\/www.tauli.cat\/institut\/actualitat\/noticies\/2022\/11\/cellers-maset-crea-la-beca-pau-massana-per-a-la-investigacio-de-malalties-minoritaries-de-li3pt\/\">iniciativa de Cellers Maset i el seu Cava Solidari <\/a>que recaptar\u00e0 i aportar\u00e0 cada any 25.000 \u20ac per a la investigaci\u00f3 de malalties de baixa o molt baixa prevalen\u00e7a en la societat.<\/p>\n<p>Inscriu-te a l\u2019acte, t&#8217;hi esperem!<\/p>","excerpt":"<p>Vine a con\u00e8ixer com \u00e9s la vida quotidiana del pacient amb FQ i les darreres novetats en investigaci\u00f3 en aquest camp, aix\u00ed com el projecte guanyador de la Beca Pau Massana per a la investigaci\u00f3 en malalties minorit\u00e0ries de pulm\u00f3<\/p>","slug":"millorant-la-vida-dels-pacients-amb-fibrosi-quistica","image":{"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web.png","id":5669,"extension":"png","width":1920,"height":1080,"filesize":1724834,"sizes":{"medium":{"width":300,"height":169,"mime-type":"image\/png","filesize":84860,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-300x169.png"},"large":{"width":1200,"height":675,"mime-type":"image\/png","filesize":887711,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-1200x675.png"},"thumbnail":{"width":150,"height":150,"mime-type":"image\/png","filesize":41307,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-150x150.png"},"medium_large":{"width":768,"height":432,"mime-type":"image\/png","filesize":386382,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-768x432.png"},"wysija-newsletters-max":{"width":600,"height":338,"mime-type":"image\/png","filesize":281533,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-600x338.png"},"1536x1536":{"width":1536,"height":864,"mime-type":"image\/png","filesize":1155324,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-1536x864.png"},"eut-image-large-rect-horizontal":{"width":1170,"height":658,"mime-type":"image\/png","filesize":892635,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-1170x658.png"},"eut-image-small-square":{"width":600,"height":600,"mime-type":"image\/png","filesize":441298,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-600x600.png"},"eut-image-small-rect-horizontal":{"width":800,"height":600,"mime-type":"image\/png","filesize":556993,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-800x600.png"},"eut-image-small-rect-horizontal-wide":{"width":800,"height":450,"mime-type":"image\/png","filesize":452390,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-800x450.png"},"eut-image-small-rect-vertical":{"width":600,"height":800,"mime-type":"image\/png","filesize":570413,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-600x800.png"},"eut-image-medium-rect-vertical":{"width":560,"height":1080,"mime-type":"image\/png","filesize":618906,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-560x1080.png"},"eut-image-medium-square":{"width":1120,"height":1080,"mime-type":"image\/png","filesize":1085847,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-1120x1080.png"},"profile_24":{"width":24,"height":24,"mime-type":"image\/png","filesize":1532,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-24x24.png"},"profile_48":{"width":48,"height":48,"mime-type":"image\/png","filesize":5357,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-48x48.png"},"profile_96":{"width":96,"height":96,"mime-type":"image\/png","filesize":18695,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-96x96.png"},"profile_150":{"width":150,"height":150,"mime-type":"image\/png","filesize":41307,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-150x150.png"},"profile_300":{"width":300,"height":300,"mime-type":"image\/png","filesize":137911,"url":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web-300x300.png"}}},"all_day":false,"start_date":"2023-04-25 18:00:00","start_date_details":{"year":"2023","month":"04","day":"25","hour":"18","minutes":"00","seconds":"00"},"end_date":"2023-04-25 19:00:00","end_date_details":{"year":"2023","month":"04","day":"25","hour":"19","minutes":"00","seconds":"00"},"utc_start_date":"2023-04-25 16:00:00","utc_start_date_details":{"year":"2023","month":"04","day":"25","hour":"16","minutes":"00","seconds":"00"},"utc_end_date":"2023-04-25 17:00:00","utc_end_date_details":{"year":"2023","month":"04","day":"25","hour":"17","minutes":"00","seconds":"00"},"timezone":"Europe\/Madrid","timezone_abbr":"CEST","cost":"","cost_details":{"currency_symbol":"0","currency_position":"suffix","values":[]},"website":"","show_map":true,"show_map_link":true,"hide_from_listings":false,"sticky":false,"featured":false,"categories":[{"name":"Confer\u00e8ncia","slug":"conferencia","term_group":0,"term_taxonomy_id":848,"taxonomy":"tribe_events_cat","description":"","parent":0,"count":48,"filter":"raw","id":848,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/categories\/848","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/categories"}}],"tags":[{"name":"agenda I3PT","slug":"agenda-i3pt","term_group":0,"term_taxonomy_id":850,"taxonomy":"post_tag","description":"","parent":0,"count":106,"filter":"raw","id":850,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/850","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"agenda Taul\u00ed","slug":"agenda-tauli","term_group":0,"term_taxonomy_id":879,"taxonomy":"post_tag","description":"","parent":0,"count":213,"filter":"raw","id":879,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/879","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"Beca Pau Massana","slug":"beca-pau-massana","term_group":0,"term_taxonomy_id":970,"taxonomy":"post_tag","description":"","parent":0,"count":1,"filter":"raw","id":970,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/970","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"Cava Solidari","slug":"cava-solidari","term_group":0,"term_taxonomy_id":969,"taxonomy":"post_tag","description":"","parent":0,"count":1,"filter":"raw","id":969,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/969","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"Fibrosi Qu\u00edstica","slug":"fibrosi-quistica","term_group":0,"term_taxonomy_id":616,"taxonomy":"post_tag","description":"","parent":0,"count":6,"filter":"raw","id":616,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/616","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"Malalties Minorit\u00e0ries","slug":"malalties-minoritaries","term_group":0,"term_taxonomy_id":968,"taxonomy":"post_tag","description":"","parent":0,"count":15,"filter":"raw","id":968,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/968","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}},{"name":"recerca","slug":"recerca","term_group":0,"term_taxonomy_id":730,"taxonomy":"post_tag","description":"","parent":0,"count":15,"filter":"raw","id":730,"urls":{"self":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags\/730","collection":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/tribe\/events\/v1\/tags"}}],"venue":{"id":3373,"author":"1","status":"publish","date":"2021-07-14 09:14:11","date_utc":"2021-07-14 07:14:11","modified":"2022-08-16 09:44:05","modified_utc":"2022-08-16 07:44:05","url":"https:\/\/www.tauli.cat\/actualitat\/recinte\/auditori\/","venue":"Auditori","slug":"auditori","address":"Parc del Taul\u00ed, 1","city":"Sabadell","country":"Espanya","province":"Barcelona","zip":"08208","stateprovince":"Barcelona","json_ld":{"@type":"Place","name":"Auditori","description":"","url":"https:\/\/www.tauli.cat\/actualitat\/recinte\/auditori\/","address":{"@type":"PostalAddress","streetAddress":"Parc del Taul\u00ed, 1","addressLocality":"Sabadell","addressRegion":"Barcelona","postalCode":"08208","addressCountry":"Espanya"},"telephone":"","sameAs":""},"show_map":true,"show_map_link":true,"global_id":"www.tauli.cat\/actualitat?id=3373","global_id_lineage":["www.tauli.cat\/actualitat?id=3373"]},"organizer":[{"id":3376,"author":"1","status":"publish","date":"2021-07-15 08:07:42","date_utc":"2021-07-15 06:07:42","modified":"2021-07-15 08:07:42","modified_utc":"2021-07-15 06:07:42","url":"https:\/\/www.tauli.cat\/actualitat\/organitzador\/institut-dinvestigacio-i-innovacio-parc-tauli\/","organizer":"Institut d&#8217;Investigaci\u00f3 i Innovaci\u00f3 Parc Taul\u00ed","slug":"institut-dinvestigacio-i-innovacio-parc-tauli","website":"https:\/\/www.tauli.cat\/institut\/","json_ld":{"@type":"Person","name":"Institut d&#8217;Investigaci\u00f3 i Innovaci\u00f3 Parc Taul\u00ed","description":"","url":"https:\/\/www.tauli.cat\/actualitat\/organitzador\/institut-dinvestigacio-i-innovacio-parc-tauli\/","telephone":"","email":"","sameAs":"https:\/\/www.tauli.cat\/institut\/"},"global_id":"www.tauli.cat\/actualitat?id=3376","global_id_lineage":["www.tauli.cat\/actualitat?id=3376"]}],"json_ld":{"@context":"http:\/\/schema.org","@type":"Event","name":"Millorant la vida dels pacients amb Fibrosi Qu\u00edstica","description":"&lt;p&gt;Vine a con\u00e8ixer com \u00e9s la vida quotidiana del pacient amb FQ i les darreres novetats en investigaci\u00f3 en aquest camp, aix\u00ed com el projecte guanyador de la Beca Pau Massana per a la investigaci\u00f3 en malalties minorit\u00e0ries de pulm\u00f3&lt;\/p&gt;\\n","image":"https:\/\/www.tauli.cat\/actualitat\/wp-content\/uploads\/2023\/03\/Plantilla-Imatges-169-Web.png","url":"https:\/\/www.tauli.cat\/actualitat\/agenda\/millorant-la-vida-dels-pacients-amb-fibrosi-quistica\/","startDate":"2023-04-25T18:00:00+02:00","endDate":"2023-04-25T19:00:00+02:00","location":{"@type":"Place","name":"Auditori","description":"","url":"https:\/\/www.tauli.cat\/actualitat\/recinte\/auditori\/","address":{"@type":"PostalAddress","streetAddress":"Parc del Taul\u00ed, 1","addressLocality":"Sabadell","addressRegion":"Barcelona","postalCode":"08208","addressCountry":"Espanya"},"telephone":"","sameAs":""},"organizer":{"@type":"Person","name":"Institut d&#8217;Investigaci\u00f3 i Innovaci\u00f3 Parc Taul\u00ed","description":"","url":"https:\/\/www.tauli.cat\/actualitat\/organitzador\/institut-dinvestigacio-i-innovacio-parc-tauli\/","telephone":"","email":"","sameAs":"https:\/\/www.tauli.cat\/institut\/"},"performer":"Organization"}}