{"id":41164,"date":"2025-01-13T09:36:06","date_gmt":"2025-01-13T08:36:06","guid":{"rendered":"https:\/\/www.tauli.cat\/actualitat\/?post_type=tribe_events&#038;p=41164"},"modified":"2025-01-22T09:59:52","modified_gmt":"2025-01-22T08:59:52","slug":"ii-jornada-del-dia-mundial-de-les-malalties-minoritaries","status":"publish","type":"tribe_events","link":"https:\/\/www.tauli.cat\/actualitat\/agenda\/ii-jornada-del-dia-mundial-de-les-malalties-minoritaries\/","title":{"rendered":"II Jornada del Dia Mundial de les Malalties Minorit\u00e0ries: construint un model integral i participatiu"},"content":{"rendered":"<p>[vc_row][vc_column][vc_column_text]Aquesta jornada t\u00e9 per objectiu donar a con\u00e8ixer les caracter\u00edstiques comunes i diferencials de les malalties minorit\u00e0ries de base gen\u00e8tica.<\/p>\n<ul>\n<li>Entendre la import\u00e0ncia de la Gen\u00e8tica Cl\u00ednica i l&#8217;assessorament gen\u00e8tic en malalties minorit\u00e0ries<\/li>\n<li>Identificar les diferents eines pr\u00e0ctiques sobre Medicina gen\u00f2mica en malalties minorit\u00e0ries<\/li>\n<li>Donar visibilitat al Treball col\u00b7laboratiu amb les Associacions de pacients amb la finalitat de millorar el seu acc\u00e9s primerenc als Serveis m\u00e8dics especialitzats<\/li>\n<li>Identificar necessitats biosanit\u00e0ries encara no resoltes a trav\u00e9s d&#8217;intervencions de pacients afectats<\/li>\n<li>Identificar els principals reptes i desafiaments en la formaci\u00f3 de professionals de l&#8217;atenci\u00f3 prim\u00e0ria en malalties minorit\u00e0ries<\/li>\n<li>Sensibilitzar als diferents actors socials sobre les conseq\u00fc\u00e8ncies de viure sense un diagn\u00f2stic<\/li>\n<li>Recon\u00e8ixer la import\u00e0ncia de l&#8217;acompanyament emocional del pacient i els seus familiars\/cuidadors.<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p>Inscripci\u00f3 \u00e9s <strong>gratu\u00efta a trav\u00e9s del link:<br \/>\n<a href=\"https:\/\/www.tauli.cat\/institut\/docencia\/postgrau\/\">https:\/\/www.tauli.cat\/institut\/docencia\/postgrau\/<\/a><\/strong>[\/vc_column_text][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[vc_row][vc_column][vc_column_text]Aquesta jornada t\u00e9 per objectiu donar a con\u00e8ixer les caracter\u00edstiques comunes i diferencials de les malalties minorit\u00e0ries de base gen\u00e8tica. Entendre la import\u00e0ncia de la Gen\u00e8tica Cl\u00ednica i l&#8217;assessorament gen\u00e8tic [&hellip;]<\/p>\n","protected":false},"author":11,"featured_media":41167,"comment_status":"open","ping_status":"closed","template":"","meta":[],"tags":[879,968],"tribe_events_cat":[999],"_links":{"self":[{"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tribe_events\/41164"}],"collection":[{"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/comments?post=41164"}],"version-history":[{"count":9,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tribe_events\/41164\/revisions"}],"predecessor-version":[{"id":42302,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tribe_events\/41164\/revisions\/42302"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/media\/41167"}],"wp:attachment":[{"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/media?parent=41164"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tags?post=41164"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.tauli.cat\/actualitat\/wp-json\/wp\/v2\/tribe_events_cat?post=41164"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}