The proceeds from the charity race that will take place on May 24 and the big children's party will be used to improve the quality of life of children with severe chronic and palliative diseases. Parc Taulí attends an average of 50 pediatric patients with severe or palliative illnesses
Sabadell Run for Children and the Parc Taulí Health Corporation, presented today at a press conference held in the Parc Taulí, the 24th Solidarity Race "Sabadell Corre for the Children" and the large children's party organized jointly with the participation of the City Council of Sabadell, and this year will take place on May XNUMX.
The presentation was attended by the President of the Parc Taulí, Modesto Custodio, the Councilor for Sports of the Sabadell City Council, Laura Reyes, the organizer of 'Sabadell Corre per los Niños', Toni Valverde, the doctor in charge of the Chronic Patient Complex and Pediatric Palliative Park Taulí, Teresa Gili, and the nurse of the same unit, Gemma Gómez.
This year, the benefits of this great solidarity holiday in Sabadell will be aimed at improving the quality of life of pediatric patients suffering from a serious chronic illness and those receiving palliative care provided by the team of professionals at the specialized unit for complex and palliative patients at Parc Taulí. In the last edition of this event, 5.200 participants were registered and more than € 31.400 was raised for a cystic fibrosis project. It is noteworthy that the four editions of this charity run have raised more than € 120.000 for solidarity projects.
V Solidarity Race 'Sabadell Corres dels Nens'
In the presentation today of the Fifth Edition of the race, the President of the CSPT, Modesto Custodio, thanked the organizers, collaborators and citizen organizations for their efforts in carrying out this solidarity initiative, emphasizing "the quality service of the Pediatrics Service, with 17 specialties, and a leader in the care of minority diseases. " Custodio emphasized that the service is part of the network of clinical expertise dedicated to the treatment of genetic-based cognitive-behavioral diseases in pediatric age and that we now "aspire to be a reference center, in conjunction with Sant's hospitals". John of God and the Valley of Hebron, in child palliative care. " Each year, the Parc Taulí attends to an average of 50 children with serious illnesses or in palliation.
For his part, the race organizer, Toni Valverde, stated that "it is a privilege to be able to continue with this project which has broken records in three of its editions". Valverde has called on the participation of all citizen initiatives that wish to collaborate in achieving a new record of enrollment and collection for the beneficiary project. "The race will be held on May 24, at 10 am in the Parc Taulí and, as in previous editions, there will be a great children's and family party with all kinds of activities," concluded Valverde.
The closing of the act was given by the Councilor for Sports of the Sabadell City Council, Laura Reyes, who emphasized that "races like the ones we present today make the city involved in this project and that the citizens can enjoy the values that the sport promotes ”
Chronic Patient Unit Pediatric Complex and Palliative Park Taulí
Dr. Teresa Gili has presented the Pediatric Complex and Palliative Chronic Patient Unit of the Parc Taulí made up of nursing, social work, psychology and pediatric professionals who care for children with complex chronic diseases and palliative care. Gili has differentiated between the two types of patients who attend the unit, emphasizing that "we address complex diseases that are not palliative, they are children who need life support methods, but they are diseases that can be stabilized or referred and the child could be discharged. " These are patients with a high need for in-hospital and out-of-hospital treatments who need a lot of help and life support methods.
Another part of the patients attending the unit is the palliative patient. "Is that child who unfortunately has a very serious incurable disease that we know cannot be cured and since we cannot offer curative treatment we can offer palliative treatment. They are very vulnerable and very fragile children. We provide physical and psychosocial accompaniment and support to the mourning of these families when the time comes for the transfer, "said Gili.
The unit's nurse, Gemma Gómez, highlighted the comprehensive support they offer to families. "We try to make the maximum care at home for families to avoid trips to the hospital. Thanks to the Enriqueta Villavecchia Children's Oncology Foundation, we have a psychologist and a social worker who go to their homes ”.
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