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Parc Taulí is one of the three reference centers in Cystic Fibrosis in Catalonia, along with the Vall d'Hebron and Sant Joan de Déu hospitals in Barcelona. This center treats 85 patients diagnosed with CF, children and adults. This accreditation means the recognition of a multidisciplinary team that works to improve the quality of life of people with CF.
The Spanish Society of Cystic Fibrosis (FQ) has awarded reference unit accreditation with a degree of excellence to the Cystic Fibrosis Unit of Parc Taulí, both for pediatrics and for adults. This is the first time that these accreditations have been convened throughout the State, classified into three levels: Basic CF Unit, Intermediate CF Unit and Reference CF Unit with a degree of excellence. For its resolution, there was a 6-month evaluation period and 11 units throughout the State were accredited. Of these, eight units have obtained the degree of excellence and the other three as intermediate level units.
The coordinator of the CF Unit of Parc Taulí and president of the Spanish CF Society, Dr. Óscar Asensio emphasizes that this recognition is the result of the joint work of a multidisciplinary team. Dr. Asensio points out that "scientific societies have started these accreditations to encourage all units to improve globally, and now we are also waiting for their acceptance by the Ministry of Health". The specialist also points out that of the eight units accredited with a degree of excellence, the one at Parc Taulí is the only one that is not from a hospital located in a provincial capital. "I think it is a matter of pride for both the hospital and the city of Sabadell that our unit has been awarded this level, thanks to the team of professionals who have made it possible, meeting the different criteria required".
The accreditation will be given as part of the IV CF Update Conference organized by the Spanish CF Foundation, which will take place at the Carlos III Hospital in Madrid next Friday, December 16.
Cystic Fibrosis is the most common hereditary genetic disease in Catalonia that seriously and progressively affects the respiratory, digestive and reproductive systems of people who suffer from it. CF, which currently affects one in 6.700 babies, has no curative treatment, although the drug Kaftrio®, which was approved in December 2021, has meant a before and after for a significant part of those affected . It is a revolutionary drug that slows down the deterioration caused by the disease and that has changed the lives of 70-75% of the population with CF throughout the State.
Around 85 people with CF, children and adults, are monitored at Parc Taulí. In the last year, 2 new cases have been diagnosed at this center through neonatal screening. In January of this year, the medicine Kaftrio® began to be administered, from which 60 patients are benefiting, significantly improving their quality of life and showing extraordinary results.
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