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Parc Taulí is one of the three reference centers in Cystic Fibrosis in Catalonia, for adults and children, and since last year it has been a reference unit with a degree of excellence, a distinction awarded by the Spanish Society of Cystic Fibrosis (CF).
The multidisciplinary team that works to improve the quality of life of people with CF cares for around 85 patients. In recent years, lines of research have evolved; treatments for patients; as well as its administration at earlier ages. For example, the medicine Kaftrio, is a drug that can be administered from the age of 6 and that stops the deterioration caused by the disease or the home spirometers, which have improved their personal autonomy.
Despite the advances, both in the detection of the disease and in its treatment, the coordinator of the Cystic Fibrosis Unit of Parc Taulí and president of the Spanish CF Society, Dr. Óscar Asensio, highlighted on World Cystic Fibrosis Day that "we have between 30%-35% of patients with CF who do not have treatment” and insisted that “there are different lines of research to find effective treatments for these people”, who are patients with an advanced state of the disease and who already have sequelae.
In this sense, Dr. Asensio wanted to insist on the importance of research into new products and asked "more speed” to the Ministry of Health to speed up the access route to incorporate new drugs for patients with minority diseases such as cystic fibrosis.
Cystic Fibrosis is the most common hereditary genetic disease in Catalonia that seriously and progressively affects the respiratory, digestive and reproductive systems of people who suffer from it. CF, which currently affects one in 6.700 babies, and is detected byscreening methods neonatal
XII National Congress of the Spanish Society of Cystic Fibrosis (CF)
From November 16 to 18, the National Congress of the Spanish Cystic Fibrosis Society will be held in Barcelona, it will be organized and chaired by Dr. Òscar Asensio and where Parc Taulí will play a prominent role.
Under the slogan 'In orbit towards the future of cystic fibrosis: New challenges', different professionals specialized in CF at the national and international level will present clinical cases, experiences, training and information from the latest research.
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