This morning, the Viatge de la Nica began from Parc Taulí, led by Izan Gabriel and his mother Yamileth Acuña. This campaign, promoted by the Hospital Sant Joan de Déu and the Spanish Federation of Rare Diseases (FEDER) and involving different hospitals in the State, aims to highlight the long and difficult path that families with children with undiagnosed rare diseases travel.
Now, Izan will share part of the journey of this traveling and adventurous doll. Each Nica includes a QR code that allows you to make a donation to the IMPaCT-Genomica Program and the FEDER Information and Guidance Service (SIO). These actions aim to promote genetic research and offer specialized guidance to people and families who have to live/coexist with a rare disease.
Everyone can participate in this campaign in three different ways: making a donation; passing the doll to another family to continue Nica's journey and/or sharing Nica's photo on social media through the profile @elviajedenica.
