III International Day of Rare Diseases
This year the conference focused on the importance of early diagnosis and management of patients with skeletal dysplasias of genetic origin. read more
Rare Diseases
Parc Taulí incorporates two exoskeletons for the rehabilitation of patients with rare neuromuscular diseases
The Physical Medicine and Rehabilitation Service has received an exoskeleton for people with unilateral gait impairment and another for bilateral impairment, purchased by the Catalan Health Service read more
Nica's journey begins from Parc Taulí
This campaign aims to highlight the long and difficult path that families with children with undiagnosed rare diseases travel. read more
The patient experience in addressing rare diseases
Parc Taulí has presented the institution's approach to caring for patients with rare diseases within the framework of the 10th XPatient Barcelona 2025 Conference read more
Parc Taulí participates in the XPatient Barcelona 2025 congress
On September 16, a conference will be held focused on the role of patients in addressing rare diseases. read more
Parc Taulí constitutes the multidisciplinary Committee for Targeted Therapies for Genetically Based Rare Diseases
This multidisciplinary committee aims to identify patients with rare genetic diseases to offer them targeted treatment to improve their condition or prevent the progression of the disease; support the clinical team by treating and monitoring the patient; manage the authorization of the treatment with the hospital's Pharmacy/CATSE and evaluate the results of the treatment in the patient. read more
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