Rare Diseases

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III Conference in the framework of the World Day of Rare Diseases

As part of World Rare Disease Day, Parc Taulí is hosting the conference "The Challenge of the Multidisciplinary Unit in Skeletal Dysplasias". This is a training activity aimed at healthcare professionals that aims to provide clinical tools that facilitate diagnostic suspicion and the appropriate referral of patients to specialized services.  

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Multidisciplinary committee on targeted therapies for rare genetic diseases

Parc Taulí constitutes the multidisciplinary Committee for Targeted Therapies for Genetically Based Rare Diseases

This multidisciplinary committee aims to identify patients with rare genetic diseases to offer them targeted treatment to improve their condition or prevent the progression of the disease; support the clinical team by treating and monitoring the patient; manage the authorization of the treatment with the hospital's Pharmacy/CATSE and evaluate the results of the treatment in the patient. read more

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