Rare Diseases Day
The Parc Taulí Rare Diseases Unit organized this day on June 13, 2019 at the Taulí Auditorium, with more than 150 registrants. Addressed to professionals who participate in the treatment of minority diseases, people interested in the field of these pathologies, as well as to patients, family members and society in general, it was an interesting experience for all. We invite you to watch the video summary of the day.
More than 5.000 people overflow the Parc Taulí of solidarity for the benefit of cystic fibrosis
Sabadell Corre pel Nens and Báilale a la Vida have once again filled the Parc Taulí with solidarity, this year for the benefit of those affected by cystic fibrosis, under the motto "Let's breathe, let's give life to patients with cystic fibrosis".
Life with Cystic Fibrosis - with Jerome and Susana
Susana is the mother of Jerome, a 4-year-old patient from the Cystic Fibrosis Unit of Parc Taulí, who explains in this emotional video how her family lives with this condition.
What is life like with Cystic Fibrosis?
Albert, affected by Cystic Fibrosis, and Carme, his mother, tell us in the first person in this emotional video that we share with you today. Next May 5th, come and run in the Sabadell Run for Children race to be able to continue researching in Cystic Fibrosis!
The Catalan Association Prader-Willi Syndrome donates € 7.500 to Parc Taulí for a study on the effect of growth hormone on adults with this syndrome.
Representatives of the Association presented the check last Friday, March 8, to the main researchers, Dr. Assumpta Caixàs and Dr. Olga Giménez. The event was also attended by the expert nurse in Prader-Willi, Rocío Pareja, and the director of Research and Innovation, Lluís Blanch.
II Update Day on Fragile X Syndrome (2019)
Presentations of the speakers of the II Day of update in syndrome of X Fragile for professinales and familiar realized realized the 26/01/2019 in the hospital enclosure of the Parc Taulí.
II Update Day on Angelman Syndrome (2018)
Round table with the participation of the professionals responsible for the different lines of the study "Angelman Syndrome: identification of new genetic alterations".