About us

The Rare Diseases Unit is made up of the Operating Committee and the set of Care Units (UECs)

The Rare Diseases Unit is multidisciplinary and consists of units that collaborate in the care, diagnosis and treatment of patients with minority diseases acting in a coordinated manner and following the policies and strategies set by the Operational Committee, responsible for proposing and implement the main strategic lines to give the best care to patients affected by minority diseases.

Operating Committee: 

Pepi Rivera Lujan - Coordinator of the Rare Diseases Unit

Carmen Manso Bazus - Coordinator of the Clinical Expertise Unit in Genetically Based Behavioral Cognitive Behavioral Diseases in Pediatric Age

M. Luisa Viguera Martínez - Coordinator of the Clinical Expertise Unit in Neuromuscular Diseases

Anna Benavent Navarro  - Head of Systems

Carmen Diaz Fernandez - Responsible for Quality

Raquel Corripio Collado - Head of Research

Monica Gomez Valent  - Pharmacy Manager

Aleix Rio Grané - Head of Communication and Multimedia

Joan Pons Pous - Technical Secretariat


For any information or management related to minority diseases you can always contact theLiaison Office.