- Mireia Córcoles
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Parc Taulí has become part of theEuropean Health Data and Evidence Network (EHDEN), a European consortium which aims to improve patient care with the homogenization of health data.
For the past years, health research institutions have emphasized the need to have clinical data available in a harmonized manner and to have a structured and standardized bioinformatics system. This is necessary in order to be able to extract data and conduct clinical studies, always with the ultimate goal of improving the health and well-being of people.
To achieve this, EHDEN is creating one large federated network of institutions in Europe in order to consolidate this discovery and analysis of information able to homogenize patient health data. In this sense, the consortium aspires to be the trusted observational research ecosystem to enable better health decisions, outcomes and care.
Currently, this European project, led by the Erasmus University of Rotterdam, already has more than 140 collaborators from 27 European countries, among which are public institutions, small and large companies and leading pharmaceutical companies.
At Consorci Corporació Sanitària Parc Taulí de Sabadell,I3PT is working in conjunction with the Department of Digital Organization of Parc Taulí in order to prepare its bioinformatics infrastructures to have the data structured and homogenized. This is possible thanks to the funding with which EHDEN is providing the collaborating institutions.
Research training with real world data and evidence generation
The EHDEN consortium makes one available to all members training package to do research with real world data and generate scientific evidence. Specifically, it has created the online platform Academy where it offers courses designed by international experts aimed at the entire scientific community.
EHDEN also publishes a series of webinars with practical information for the scientific community.
The I3PT wants to recommend, especially, the viewing these webinars:
- Reducing cancer deaths and complications by leveraging OMOP and OHDSI
- The future of primary care research in Catalonia
- From question to publication in 5 days
The EHDEN project is inin line with the international initiative Observational Health Data Science & Informatics (OHDSI) and OMOP common data model (CDM). In fact, EHDEN's infrastructure uses advanced bioinformatics standards and tools based on OHDSI and CDM networks, with the goal of being able to collaborate internationally.
"The European Health Data & Evidence Network has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No. 806968. The JU receives support from the European Union's Horizon 2020 research and innovation program and EFPIA."